The Maney & LauRen Morning Show

Weekdays 6:00AM-9:00AM

Lots of families hit the road with their kids, but one Canadian family of six is on a mission to see the world while all of their children still can. Edith Lemay and Sebastian Pelletier are parents to four kids and three of them, 12-year-old Mia, seven-year-old Colin, and five-year-old Laurent all have retinitis pigmentosa, a genetic disorder that affects the eyes and causes loss of vision. Their son Leo, nine, is the only one who doesn’t have it.

With no cure or treatment to slow down the disease, the parents are trying to give their children the experience of seeing as much as they can before they completely lose their vision – which is expected to happen in midlife and their oldest is preparing for blindness by age 30. After Mia’s specialist recommended the family make “visual memories,” they decided to do just that. “I thought, I’m not going to show her an elephant in a book, I’m going to take her to see a real elephant,” the mom of four says. “And I’m going to fill her visual memory with the best, most beautiful images I can.”

The family began their world adventures around eastern Canada in July 2021 and their international tour kicked off in Namibia in March 2022. Last week, they left Mongolia to head to Indonesia and have been focusing their travels on crossing off bucket list activities the kids have come up with, like drinking juice on a camel. They have so much to see that the family estimates they won’t be back home in Quebec for at least another six months. And the parents are still optimistic that their kids will never have to go blind, as Sebastian says, “Hopefully, science will find a solution.”

What an incredible thing these parents are doing for their kids!